Saturday, June 12, 2010

Almost there!

I am almost there... to getting my pacemaker put into my stomach! I leave the 21st!!! Then on the 22nd I get the pacemaker put into me! And then I am magically going to keep food down! The doctors said that all the patients they have had that are like me have had great results! So when I hear that I wasn't scared about the surgery anymore! so that was a great releaf! But for now on the 16th I have my brothers wedding. But right now i am just counting down the days tell I leave to Columbus, Ohio! I will right soon!!!! Love Gentrie


  1. Gentrie,

    We are praying for you here in the Lefrandt home! Please know how often we think of you. We are working on donations for your garage sale. I hope you know how much we love you girl! You are a fighter and have an amazing family to carry you through this! We know miracles are on the way!


    The Lefrandt Family

  2. Just found your blog after reading the article in the Deseret News and wanted to send my love and prayers! I can't believe what you've been going through. I'm so sorry.
    I hope the surgery went well and that you will soon be on the road to FULL recovery.
    Praying for miracles!

    Amber Kindred

  3. Hey Gen! It was so good spending time with you at the Garage Sell. You are a fighter Gen!!! I look up to you so much for keeping a smile on your face! I wear my Fight4Gen bug bracelet everyday and keep a prayer in my heart for you. I love you Gentrie. Hang in there!

  4. Gentrie: I left a message on your website after hearing your story from some people in my ward. My name is Katie, I'm in my early 20's, and I was diagnosed with gastroparesis in early 2009. I haven't eaten for over a year. It sounds like you are having a rough go with your GJ tubes not working and having to be on TPN. I am so sorry. While I don't know anything about TPN, I do know about being in the doctors/hospitals all the time, NJ tubes, J tubes, botox, not eating, losing a ton of weight, and just trying to be young and deal with gastroparesis.

    I would love to come spend some time with you and talk about everything. I just live in South Jordan and currently can't work so I am pretty much free. I saw that Doug Robinson said in his article that you are his neighbor. I am really great friends with Doug's son Preston. We went up to Utah State together and have known each other for like 6 years now... Dealing with a chronic illness is pretty crazy, right? So having someone to talk to is always nice. Especially someone who can understand where you are coming from.

    Talk to your parents and see if they think it would be helpful for you to talk to someone who is going through the same stuff. We could have a "lunch date"... haha... I know you are probably very weak right now, so even if I just came over and sat with you and your mom and chatted or something... Anyway, I put my contact info in the other message I sent but I didn't know the best way to get in touch with you. So here it is again- 801-707-4992 or

    I hope that you don't think I'm crazy to send you this huge message, but gastroparesis is so rare and so hard that I just felt like I should reach out to you after reading your story. Hope to hear from you soon!

  5. I have been praying for you and even added you to my blog page hoping that other people would take notice. My wife and I just heard that you are going to be getting the pacemaker after all. That is so great. You are in our prayers young lady. I hope things go well and we will keep on praying for you.

  6. I found your blog from the deseret news article too. My husband, two girls and I just moved to Columbus, OH from Utah two years ago. If you need anything while you are here (even from a stranger), we're praying for you and we're close!

  7. Hi Gentrie!
    I am so sorry to hear this is happening to you. I was diagnosed with a mild form of GP almost 2 years ago (when i was 21). The docs dont know why it happened, but just one night i started feeling sick and after 3 or 4 doctor consulations and i was told i had gastroparesis, however a mild case as i do feel nauseaus occasionally but never throw up. The doc gave me a drug called Motilium which i believe helps me with keeping the food down. I try to eat small amounts of low fat, low fibre food and that usually does the trick. I am so sorry to know that you have such an advanced form of GP, i dont think i could deal with it as well as you have. I wish you all the very best and i hope that your surgery is successful and you can carry on living a normal life.

    Keep positive.

    Warm regards from,
    Adriana (Australia).

  8. hi gentrie! my name is shea, and im suffering from severe gastroparesis right now, after seeing your story on the today show, i didnt feel alone anymore. for such a long time with doctors telling me i just had anorexia. i thought no one knew what this was like, then i saw your story and i felt connected to you even though we never met, youre so strong and i hope to get better like you soon! i would love to talk to you and maybe share stories. i need some support to get through this and i know you understand! stay strong!
    shea :)